Nice try

Just got a knock on the door from the department secretary.

"I've got some pumpkin bread in the breakroom if you want some."

"Does it have flour in it?"

"Oh that's right, you can't eat it. Sorry." And quickly ran off.

I'll be avoiding the breakroom today. Now I have pumpkin stuff on the brain. Guess I'll start looking for GF recipes, but look forward to trying the Gluten Free Creations flour I have.

Happy dance

She must have heard my chanting. The phone rang a few minutes after I posted.

Had a nice talk with her, but the signal faded in and out so I didn't get all the info.

But I told her I was moving to the area, read the criteria for the trial, and would be interested. "On paper," I qualify for the study. So she's sending me all the info to my new address.

I asked her some questions. It's an interesting premis that I had not heard about before. For some reason, celiacs have increased levels of this secretion protein. I can't wait to get the name of this protein and do some research. But the medication is to block this protein.

The other good news is that it passed Phase 1 clinical trial. So I know it won't cause some sort of metabolic shutdown that puts me in the ICU. I'm always a bit nervous about blocking proteins when we don't know if it'll cause problems elsewhere in the body.

There's a gluten challenge involved. I'll have to get the "fine print" of that information. Does it mean that I can get whatever I want, or will it be tightly controlled amounts of gluten provided by the doctor.

The bad news:
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It's only a two week trial. If I get a free pass for gluten, then I have only two weeks to have whatever I want. There's three weeks of screening and follow up care afterwards. Then that's it. The clinical nurse said something about re-participation, but the call was going in and out, so I'm not sure on that.

Should I make a list now in case it's open range on gluten? Or would that be even more crushing if it's measured amounts of gluten from the doctor?

wake up call

There's nothing cooler than opening my eyes first thing in the morning and seeing nothing but a little kitty face.

Adira's such a sweetie when she wants to be.

Oh please, oh please

Still recovering from another tough weekend. Got back to Tucson after 5 on Sunday and crashed early to try and recover. And yet, I still feel run down and crappy. And I forgot my travel coffee cup full of fresh coffee this morning.

But I was doing some searching to see if there's any celiac research going on in the valley. Figured I could use my celiac as an advantage. Came across a scary article about a case study involving a patient with celiac only testing anti-gliadin positive and had NK cell lymphoma.

I knew that celiacs in general have a higher risk of lymphomas.

I need to find a good doctor for my follow up care relating to my MCS. I also want to get the basic tests done for vitamin levels and a basic CBC (to kill the lymphoma possibility).

Once I gave up searching publications, I came across a website about the Mayo Clinic in Scottsdale being part of the Alba Therapeutics clinical trial. They're testing a pill you take before wheat consumption and it prevents the immune response from it.

I called and left a message for the clinical nurse. I think I can qualify. So it's time to chant "oh please, oh please, oh please" until I hear for sure that I can get in.